Stories make the invisible visible.
Keeping the light on for rare
Rare disease is not a moment. It is lived every day. 24/364 exists to create awareness and inspire change beyond Rare Disease Day through stories, films and experiences.
Start with the
stories.
Then step into the
movement.
Meet the people featured in 24/364 rare disease stories
In the Light is the docuseries that bears witness to patients, caregivers and families who live with rare disease.
Watch Docuseries
The film festival for the days that often go unseen.
The 24/364 Rare Disease Film Festival invites storytellers to bring rare disease from the margins into full view, creating a shared space for film, advocacy, science, and community.
Explore the FestivalA movement made for the
other 364
Building on the awareness Rare Disease Day creates, 24/364 represents the reality that follows: the days of resilience, uncertainty, courage, care, and connection that deserve to be seen year-round.
Community transforms isolation into belonging.
Visibility keeps rare disease part of the conversation after the spotlight fades.
300+ Million
People worldwide live with rare disease
Together, let’s drive the conversation to the forefront
About 24/364 Get updates about our films, events, drops and more.
You’ll be the first to know about 24/364 film festival news, plus content and opportunities to stand with the rare disease community on the 364 days beyond Rare Disease Day.
Join the movement
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